Well I thought I would give a feeding update on the little man since it has been awhile since the last. We haven't made too much progress since we have been home from Children's. Trey has restarted his weekly feeding group therapy and gets individual home therapy every other week (our lovely insurance will only allow so many visits). And with all the snow, therapy has been cancelled and Trey came down with a pretty bad case of croup this past week. So we haven't been able to have any sessions lately. Which has been a bummer.
We have been going in for weekly weight checks since we have been back from Seattle. Trey is on an appetite increasing medication and alternates one week on and one week off. The weeks that we are off his weight drops pretty significantly and then the weeks we are on his weight goes back up. But obviously we can't stay like this forever. We need to have the little guy continuing to gain weight. So his dietitian and GI doctor are doing a trial of having him on the appetite increasing medication longer. In the past when Trey has continued this medicine for a period of time it begins to lose its effectiveness. Unfortunately this past week of illness has caused things to be thrown off greatly. So if we don't gain a certain amount of weight back by tomorrow Trey will have his calories by his G-tube increased. The only thing nice about Trey's feeding tube especially when he is sick is not fighting over getting medicine down and having the ability to keep him hydrated easily.
But Trey is on his way to feeling 100% after this tough week and hopefully we can get back on track once again.
Here are some pictures of the little guy before all of our snow hit.
Getting some fresh air...
Hope Trey is feeling better, looks like he's had it rough lately! Miss you guys and think of you often!
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