Our Little Busy Body:)

Trey reached the 20 month mark this past August 16th and is busier than ever these days. Curtis and I have a hard time keeping up with him at times. Trey's favorite new thing to do is climbing up on EVERYTHING. The picture above I caught him sitting on our clothes hamper that he knocked over.

Trey has become quite the little social butterfly. He loves to wave and charm everyone by blowing kisses. He is quite the entertainment where ever he goes. Showing everyone his new songs he has learned or his latest dance moves.

I thought I would give a feeding update since it has been quite a while. About a month and half ago Trey again started to decline greatly in his progress he was making with eating and drinking. We thought the incoming teeth were the main culprit but then the eating and drinking almost completely stopped. He started to then have vomiting a couple times a week which previously wasn't an issues anymore.

So I started venting his stomach more with his g-tube. This is where you attach an extension tube to his stomach and it releases air or food if needed. Well Mr. Trey started to have old looking blood come out of his tube. Obviously concerning. Where was this coming from?? Well the blood continued and the vomiting worsened. Soon he began throwing up small amounts of old blood. Of course when it rains it pours. Trey's increasing tummy problems got very bad right around the time of my grandma's stroke.

So after blood tests to make sure he wasn't having severe bleeding we got on a quick flight to see Grandma and take Trey to his GI doctor. We ended up having a upper GI endoscopy done. This is where the doctor places a flexible endoscope down his throat to visualize his lining in the esophagus, stomach, etc.

Trey had the same anesthesia he did for the g-tube placement. So we knew what to expect but they had quite a bit of difficulty this time with the IV placement which wasn't fun for him or us.

Trey has never been scoped before so we were anxious to hear what Dr. Picken's saw. He was able to find the bleeding during the procedure. Around Trey's g-tube there is that balloon that keeps the tube in place. Well either the balloon size was too big for Trey or the way his own anatomy and all his movement caused the balloon to erode into his stomach lining. So the doctor replaced the tube and decreased the balloon size. We were going to come back in a week to follow up and hope the decrease in balloon size would stop the bleeding.

Well things did improve for a couple of days and of course the night before Grandma's memorial service the bleeding started again. So right after the service back to Mary Bridge we went but this time Dr. Picken's inserted a different tube called a Nurtiport. The difference with this balloon is the end is flat and not rounded to it will hopefully sit up against his stomach lining and not cause as much friction.

Trey's new g-tube.


So far since the new tube placement no bleeding and Trey has had increase in drinking and doing actually pretty well with eating these last few days. This is very encouraging. I got so teary the other night when he actual took bites of food because it has been so long since I have seen this from him.

Worst case scenario if the stomach tissue does not heal on its own Dr. Picken's would have to scope Trey again and inject epinephrine into his tissue which would cause the blood vessels where the bleeding is at to constrict. But we are crossing our fingers that his new tube will do the trick.

As usual Trey is a little trooper. Still a big ball of energy, humor, happiness and fun:)

Recent pictures of the little man...