Improvement!!!

Well I am excited to write that Mr. Trey has had some big improvement with his eating progress in the last week or so.

On Monday he was able to try some noodles and some actually got down. This week he has consistently been willing to TRY almost anything we put on his plate (that doesn't mean swallowing yet but it makes it to his mouth). He still struggles a lot with figuring out chewing and tolerating certain textures but he is trying SO hard. Trey has also been working through his gagging episodes. In the past if he had an episode it would set him so far back but now he is usually willing to try again right away.

With all this new progress his therapist in Pullman contacted his dietitian and GI doctor at Mary Bridge and they collaborated and decided to do a trial of decreasing his night drip down to 2 1/2 hours from our recent 5 hour drip. He still gets his 4 boluses during the day. This will hopefully increase that appetite drive in addition to his appetite stimulus medication. We will do a weight check in about a week or so to make sure that isn't dropping.

But we are SO excited and encouraged for these baby steps Trey is making right now.

Here are some recent pictures of Trey eating. He loves these Elmo sunglasses of his lately. He has to be cool while he is eating as you will see...





So proud of this little boy!!!!